Join me for my conversation this week with Becky Tilley—a wonderful mom, author, and advocate for celebrating our differences. Becky candidly shares her personal journey with Koolen-de Vries syndrome, a rare condition impacting both her and her children. Despite the challenges, Becky's resilience shines as she reveals how she found strength, uplifting others through her writing and speaking engagements.

Explore Becky's incredible story, including insights from her book 'Thrive Rare, Embracing the Uniqueness Within.' Delve into her mission supporting individuals with rare disorders, and gain beautiful perspectives on self-acceptance, living life to the fullest, and her dreams for the future.

Join us as we explore Becky Tilley's mission to embrace differences, viewing them as opportunities for learning and growth, fostering a world where everyone's strengths and weaknesses are valued.

Highlights from this episode:

Becky’s 18-month journey of tests led to a tri-genome blood test, providing a conclusive diagnosis and hope, signaling faster diagnostic methods.
How Becky's son's diagnosis unveiled her own syndrome, passing it to her unborn child, creating a unique triple diagnosis, and intertwining their family's health story.
Witness how Becky’s diagnosis transformed into her power, igniting inspiration as she boldly embraced her uniqueness, turning it into a remarkable force for positivity.

A little bit about Becky:

Becky is a passionate advocate for embracing uniqueness and finding strength in adversity. Her personal journey with rare diagnoses, as well as her experiences as a parent, inspired her to share her story with others. Through her writing, she hopes to inspire individuals to embrace their own journeys and celebrate their unique paths.

More about Becky:

Instagram: thrivingrare

Youtube: @thriverare

Thrive Rare: Embracing The Uniqueness Within: https://a.co/d/dpyaWqX

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